Wednesday, May 28, 2014

Looking back on 10 years...

10 years ago, T and I sat across from a Diabetes Nurse Educator - our heads were spinning. It was hours before T's bachelor party in the French Quarter and 2 days until our wedding. We got a one hour crash course in carb counting, medication, checking blood sugar, the doctor's cell phone number with instructions to call it every few hours and not to drink alcohol! His diagnosis: Diabetes 1.5 - not really type 2 or type 1. (We later learned that if it hadn't been our wedding weekend, they would have admitted him.) I can honestly say, it was one of the craziest times of my life! I still haven't ordered photos from the wedding- in my mind I can visualize a healthy looking groom but the reality in black & white photos are far from that. He was pale, skinny and his tux looks 3 sizes too big. The vow of "in sickness and in health" still makes me want to tear up.

For a year after, T starved himself on sugar free jello and low carb snacks to keep his blood sugar in range but it wasn't working. Thankfully, we moved to DC and the right tests were run that he was correctly diagnosed with Type 1 Diabetes. With that came a new management plan: insulin!

10 years ago was the start this wild roller coaster. I could lie to you and say that I'm the prefect wife to a type 1. But I'm not. I'm a control freak (shocking, I know!) and I've had to learn that diabetes just can't be controlled the way I want it to be. One plus one doesn't always equal two. Hypoglycemia happens and no, it's never convenient. Pumps fail. Meters and glucose can be left at home accidentally. I've learned that life just happens and you have to roll with it.

I'm looking forward to another 10 years to grow next to a man who is a daily role model for our Type 1 eight year old.





Thursday, July 18, 2013

M Bear


When M was diagnosed back in 2009, we received a "Bag of Hope" from JDRF. It came with helpful booklets, meters, etc and.... 

Rufus, the bear with diabetes, and his storybook

He comes with a medical ID & colorful patches to show injection sites.


But given that M was 3 years and 48 days old... 
a boy bear wouldn't do.

On the way home from the hospital, we stopped by the craft store to buy Rufus a pretty pink dress.
Rufus became M Bear, the girl bear with diabetes.

M Bear quickly became a favorite toy.

She had daily blood glucose checks....


and insulin shots (check out the colorful syringes)...



and matching Halloween costumes. 



A the week before M started her insulin pump, M Bear was HUGE help! 

Like M, the bear received an multiple daily injections (MDI). But then after a few days, M Bear got an insulin pump and no more shots!

It allowed M at 3 years old to understand the difference between MDI & pumping. 

After that, selling the insulin pump was easy! 
(And the fact that it was a pink pump!)

On August 3, 2009, M got her last shot before breakfast and we celebrated! 





And we started the new adventure with pumping!



But every four years an insulin pump is out of warranty and it's time to go pump shopping.

I find the whole process like car shopping. You want to pick the right make and model that has the features that you'll need for the FOUR years! 

So that's where we are now... 

Shopping for a pump that will make my current 7 year old happy as well as my future 11 year old. 

It's not an easy task and M is anti- change. 

And when it comes to something she has worn 24/7 for the last 1460 days, change is out of the question.

This makes testing out new insulin pumps hard. 

( Unfortunately for M, her mother is unwilling to order the same 
make & model insulin pump she currently owns. )

But thankfully, M Bear doesn't mind trying out new things! 

On Tuesday, M Bear started a week trial of the Tandem t:slim


So far we are LOVING it! 

The touch screen is awesome! 
(more to come later on the t:slim thoughts)


And tonight, since M had a pump change...

M bear needed a pump change too! 



M was in heaven! It was the first time she had ever done a pump change. 





And since M needed a new Dexcom sensor tonight....

guess who is now wearing a CGM??




I'm learning that it come in handy to keep old, outdated diabetes supplies! 



And then she needed a BG check too.....









Thursday, April 4, 2013

D360

I had this awesome idea of starting a D360 section.

Basically, you take a "day in the life of diabetes" photo EVERYDAY for a year.

Yeah, who was I kidding.

I'm good at taking the photos but then transferring them my laptop & uploading them on blogger at the end of the day seems to be more than I can handle in life.

Then I was like: I'll just do a weekly "Wordless Wednesday" post.

Yeah, on Wednesday's my Girl Scouts suck the life out of me....

So......

Here ya go.... I give you some photos.














Tuesday, April 2, 2013

437 Questions

I saw this meme on Facebook last week. 



This morning snuggled on the couch, my resident 4 year old started off the morning with a few questions....

Why does M have diabetes?
How did she get diabetes?
Why does her pancreas not work right?
Why does she check her blood?
How does the meter work?
Does it hurt?
What is insulin?
Why does M need a pump?
How did M get diabetes?
Why does her pancreas not work?
How did you know she had diabetes?
How long did she stay in the hospital?
What did they do to her in the hospital?
But why did her pancreas stop working?
How did you know she had diabetes?

I answered each question. 

He paused. I could tell he was thinking. 

Then came the questions that I knew he really wanted to ask...

C: Mommy? Will my pancreas stop working?
Me: I hope not. But if it does, it will be okay.
C: How will you know I have diabetes?
Me: Mommy will just know. Like I knew with M. You will start asking for more water and going potty all the time.
C: I hope that doesn't happen. I don't want a pump.
Me: I know, little man, Mommy too.
C: Know what? I better just drink lots of apple juice. Then I won't ask for lots of water and go potty. Okay?
Me: Okay, little man. Maybe just a little apple juice. 
C: Mommy?
Me: Yep.
C: Can I watch Backyardigans? 

Saturday, March 2, 2013

lesson learned

I'm not a "what's your number?" mom.

 I don't ask M to test her blood sugar first thing when I pick her up from school. I trust that she can feel her lows and she wears a CGM. She often tests first thing after returning home because she wants a snack.

On gymnastics days, I pick her up and we head straight to the recreation center. She changes clothes, then we head to the viewing deck to watch current class and she eats her snack.

I'm not the best about carrying extra supplies. We mostly stay in a 5 mile radius of our house during the week. I can always run home. If we are going to out for the day, I'll toss a Vera Bradley makeup bag with extra everything into my purse. 

Last Friday, I kinda learned my lesson. 

We were already running a little late, she had 12 minutes to eat her snack and be on the gymnastics floor for class to start. 

I handed her the meter case and asked her to test. 

"Ugh, mom, I don't have test strips!" She holds up the empty black container.

REALLY!?!? For the life of me, I don't see why the aide doesn't replace it with a new vial when the current one is empty. But that's a rant for another day!!

"Okay, hand me your CGM."

90

"Do you feel low?"
"No, I feel fine."

I decide to give her the snack & not give her insulin to cover the carbs. She quickly eats her snack and is ready for class. 

This is the highlight of her week!

Just as I'm sending her down down, the CGM buzzes. 


78
Crap! She's now low. 


"Do you feel low?"
"NO!"

Thankfully, I have a small tube of glucose tabs in my purse. I hand her 4 and she inhales them.

"M, if you feel low TELL YOUR TEACHER. He will call me down. Have fun!"

I see her run on to the gym floor and her class starts warming up.



Three minutes into class: BUZZ BUZZ BUZZ! I look at her CGM

Under 55. 

@#$@!!!

Now this is where I totally forget everything I know about how her CGM works and the anatomy of lows. 

The CGM can be 20% off and 20 minutes behind. Plus, when there is a low it lags more. Often the blood sugar will already be back in normal range and the CGM will still show the blood sugar dropping.

But none of that mattered in the moment. I had no meter to test and I was watching her gallop back and forth in front of me.  She didn't look low but I didn't want to take a chance. 

I ran down the stairs and entered the gym. I called her over and give her the LAST 3 glucose tabs I had.

"M, do you feel low?"
"I SAID: NO!"
"Your CGM has you at 55. Do you want to sit out for a little bit?" 
I see the fearful look in her teacher's eyes.
"No! I'm NOT low. I don't want to miss it."
"Okay, listen to your body!"
She rolled her eyes.

And I decided to trust her. 
Trust that she knows her body and will feel the low. 
And pray! Lots of prayers!

I walk back upstairs.

"She doesn't look 55. Does she look 55 to you? She wouldn't be looking this good at 55. Right?"

Another mom gives me a strange look. 

I sit the CGM back on my bag and say another prayer. 

After a few minutes, I click the CGM to check her number. 

out of range


OMG! Seriously! 

Point taken. I will be more prepared! 




Friday, February 22, 2013

the grass is always greener....

A few weeks ago, M was crying that she didn't want diabetes any more: "it wasn't fair!"

Thankfully, T often handles these moments.... together will list all the things that hate about diabetes: lows, checking blood sugar, pump changes, etc.

But that night was different.

M: It's not fair that I have diabetes.
T: No, it's not fair.
M: I want to do things all the other kids do...

This is where it felt a knife going into my heart. We have NEVER let diabetes keep Maddie from anything. Anything. Even if it means more work (or less sleep) for T & I.

(Well, that's a lie. Sleepovers. I haven't let her go on a sleepover yet. But I'm working on it - in the next few months. Pray for me!)

Me: What things can't you do?
M: Eat candy everyday.

I started laughing.

Me: Does your brother eat candy everyday?
M: No.
Me: You don't eat candy everyday because it's not good for your body. Not because you have diabetes! We make good food choices in this family. Candy is a sometimes food. We eat it sometimes as a treat.


She was happy with that answer. But it's gotten me thinking: what else does she think diabetes is keeping from her but really it's a parenting choice??

So I've started giving these long explanations for things....

M: Can I eat the fruit loop necklace I made at school?
Me: No, it's filled with yucky dye and chemicals. Plus you played with it all day at school. It's covered in germs and we just got over the flu. And Mommy can't take another two weeks of the flu.

She rolled her eyes and let out a sigh...






Wednesday, February 20, 2013

moving in.


When T was diagnosed, we lived in a small house (still do) and storage space was limited. 

We came back from our honeymoon to tons of wedding gifts and a boat load of diabetes supplies. For the longest time, all his stuff graced the top of our dining room bar.  Then it was moved inside of its cabinets.  The poor guy had to balance the boxes on top of the liquor bottles. 

And that's the way it was for almost 5 years: me refusing to give diabetes space in our home and life. 
Then four years ago today, I reluctantly welcomed diabetes in. 

Within hours of bringing M home from the hospital, I cleared out not only one but TWO cabinets in the bar. I packed away the crystal and barware that had hardly been used since we had kids. I rearranged the kitchen to make space for the liquor bottles. I organized bins and boxes to make life with diabetes easier. 

Diabetes was here to stay. 

Six months later, both started different pumps: M (Animas) & T (OmniPod) - each with different supplies, meters & test strips. 

The bar was sold on craigslist and I replaced with an ikea cabinet. 

Now with the help of the trusty label maker, the diabetes cabinet is the most organized place in our house.